tag:blogger.com,1999:blog-18943510.post7576166127884237246..comments2023-08-21T02:57:37.362-05:00Comments on Dr. Wes: HIPAA, Case Reports, and the "Small Cell" ProblemDrWeshttp://www.blogger.com/profile/17438019699222125477noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-18943510.post-35833082211634414662012-11-06T07:06:08.966-06:002012-11-06T07:06:08.966-06:00Point taken Carolyn. But from what I have read, to...Point taken Carolyn. But from what I have read, too many times the permission is NOT given...sometimes due to the too much paperwork and lack of understanding. Medical Researchers suffers...that trickles down to people. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-18943510.post-72239477077737961272011-12-02T08:40:07.471-06:002011-12-02T08:40:07.471-06:00Simple common courtesy here, docs - get permission...Simple common courtesy here, docs - get permission from patients or next-of-kin first. These "interesting cases" belong to real human beings, not just you, your readers or your Twitter followers. That is the whole point around protection of privacy.<br /><br />Duh....Carolyn Thomashttp://www.myheartsisters.orgnoreply@blogger.comtag:blogger.com,1999:blog-18943510.post-20897392703012862072011-11-21T10:01:40.675-06:002011-11-21T10:01:40.675-06:00David-
Great summary of the issues. Doctors, unf...David-<br /><br />Great summary of the issues. Doctors, unfortunately, have been caught in the legal squeeze. Nurses, too. The more unusual a patient's case becomes, the more an electronic discussion of any form can be used against us. (Even cloaked message boards (a la Sermo) aren't immune.)<br /><br />As a result, will we see case reports become extinct?<br /><br />Seems so.DrWeshttps://www.blogger.com/profile/17438019699222125477noreply@blogger.comtag:blogger.com,1999:blog-18943510.post-25631601219408666482011-11-21T07:24:57.679-06:002011-11-21T07:24:57.679-06:00The bottom line is that HIPAA rules in their curre...The bottom line is that HIPAA rules in their current form are just not compatible with our reality. Note that the 18th of those little rules about HIPAA says that not only must you strip out the first 17 categories of identifiers in order for a record to be considered "de-identified," you must also strip out, essentially, *anything else* that might be used to re-identify the David Harlowhttp://healthblawg.typepad.comnoreply@blogger.comtag:blogger.com,1999:blog-18943510.post-22391365666397660892011-11-19T22:46:30.662-06:002011-11-19T22:46:30.662-06:00I'm not from the US, but can't a patient a...I'm not from the US, but can't a patient agree to waive their rights under HIPAA to allow this sort of case to be published? I know that if I was a 'small cell' type of patient, I'd want the info out there that might allow those in similar circumstances to mine to be better treated.Sharp Incisionshttps://www.blogger.com/profile/05553241603351201952noreply@blogger.comtag:blogger.com,1999:blog-18943510.post-79530263856684852412011-11-19T20:48:50.780-06:002011-11-19T20:48:50.780-06:00Saying 'South Dakota' might have helped in...Saying 'South Dakota' might have helped in this case. But many doctors do not blog anonymously.<br /><br />If I write about a case, it's obvious what hospital it came from. (I only work at one.) Knowing the hospital a case comes from makes for identifiable patient information. (As in it's a small world.)<br /><br />Sure, I can change details, but in a small medical community, Dr John Mhttp://www.drjohnm.orgnoreply@blogger.comtag:blogger.com,1999:blog-18943510.post-38502105318377959172011-11-19T12:02:46.349-06:002011-11-19T12:02:46.349-06:00why not just say south dakota instead of minnesota...why not just say south dakota instead of minnesota? the state is not relevant to the case right? or just leave location off altogether.Anonymousnoreply@blogger.com